Tracy Stackhouse

Tracy Stackhouse is a clinical pediatric occupational therapist who has specialized in working with children, adults, and families affected by fragile x syndrome (FXS) and Fragile X related conditions since the late 1980s. Through this work, first at Children's Hospital in Denver, continuing at the UC Davis MIND Institute, and now at the nonprofit center she co-founded (Developmental FX), she has been able to provide continuity of care with hundreds of families affected by FXS. This allows her to offer a perspective to the families she serves and the colleagues with whom she collaborates about how FXS looks neurodevelopmentally. Tracy is committed to conducting research to advance the understanding and treatment of neurodevelopmental disabilities and FXS specifically. She is the director of the Developmental & Fragile X Resource Centre in Denver, CO, which is included as a part of the Denver Fragile X Clinic of the Fragile X Clinics and Research Consortium (FXCRC). She has been involved in fragile X clinical care and research since 1989 and has been involved with the National Fragile X Foundation (NFXF) since 1989, including active contribution to clinical materials and general advice. Tracy is a member of the Clinical Research Consortium of the NFXF, as well as a member of the Scientific and Clinical Advisory Committee. In 2013, she served as a consultant to Novartis during their clinical trial for a targeted treatment in FXS. Recently, she has been involved in the efforts to identify feasible and reliable neuromotor outcome measures that can be used in clinical trials. This project resulted in development of the FX Motor Battery, which is proposed to be further piloted in this study. Tracy is committed to the success of the proposed project and has a history of collaborative work with this research team that will support this project’s success.