Rehab Complications in the HSD/EDS Patient

Presented by Heather Purdin and Patricia Stott

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Video Runtime: 91 Minutes, Learning Assessments: 42 Minutes

This course dives deeper into the more complex presentation of HSD and EDS. While these conditions can be confusing in their presentation, there are also correlated conditions that are more prevalent with a diagnosis of HSD or EDS that can be confusing, overlapping, and/or misunderstood. We begin to take a closer look at some of the more commonly seen issues and their potential causes, along with red flags in this population for the practitioner to be able to recognize and treat or refer out as appropriate. This course is appropriate for those in physical therapy, occupational therapy, athletic training, and nursing.

Meet your instructors

Heather Purdin

Heather Purdin has been a practicing PT in an outpatient setting for 26 years and has a special interest in chronic pain, fibromyalgia, and connective tissue disorders. She is president of the Oregon Area Ehlers-Danlos Society. She is also president of Good Health Physical Therapy & Wellness, a private practice specializing…

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Patricia Stott

Patricia Stott treats primarily those with HSD/EDS and those considered highly sensitive patients at her own practice, Elevation Wellness, outside the Denver metro area in Colorado. Also trained in functional and herbal medicine, she works on health and wellness through holistic strategies with these patients, both in person…

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Chapters & learning objectives

1. Comorbidities and Overlapping Conditions in HSD/EDS

HSD and EDS are connective tissue disorders involving multiple systems throughout the body, and this can make the patient more at risk of developing certain other complex or rare conditions. The multiple systems, MCAS, and dysautonomia are briefly reviewed in this chapter.

2. Head and Neck Conditions in HSD/EDS: Red Flags

This chapter reviews the red flag conditions that are more common in a population with HSD/EDS. We will cover the presentation of upper cervical instability, Chiari malformation, Eagle syndrome, cranial CSF leaks, and changes in intracranial pressure. Presentation, differential diagnosis, and in-clinic suggestions are offered.

3. Head and Neck Conditions: General Presentation

This chapter will review the conditions that are found with more frequency in the HSD/EDS population that are not considered red flags, but more common occurrences. This chapter will briefly review headaches, migraines, trigeminal neuralgia, and postconcussion syndrome.

4. Spinal Conditions in HSD/EDS

This chapter presents the spinal conditions that are more common in the HSD/EDS population along with the presentations, differential diagnosis, and in-clinic suggestions. While these conditions are considered rare in the general population, they tend to be more prevalent and/or more symptomatic within the HSD/EDS population.

5. Recognizing Priorities in Treatment

It is not unusual for a patient with HSD or EDS to present with multiple overlapping, compounding diagnoses. This can become confusing for a provider to determine the most effective place to start treatment. This chapter reviews the seven main issues we have found with our patients as places to start determining what the primary issue is and how to direct appropriate care for the most effective long-term management strategies.