Duchenne Muscular Dystrophy Part 3: Community & Home Environments

Presented by Claudia Senesac

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Duchenne Muscular Dystrophy (DMD) is the most common childhood muscular dystrophy. Much of what we have known about this disease has been based on years of clinical observation, muscle biopsy, and other limited testing. Longitudinal studies and clinical trials are shaping our “new understanding” of this disease. The courses related to DMD will span pathophysiology, research, the development of therapy recommendations, and quality of life issues. Therapy recommendations are based on predictive models of biomarkers and function, helping therapists and families plan for the future. Therapists play a critical role in caring for boys and young men with this disease.

Meet your instructor

Claudia Senesac

Claudia Senesac is a clinical associate professor at University of Florida in the Doctor of Physical Therapy department. Her teaching responsibilities include functional anatomy dissection and pediatrics in physical therapy. She has over 37 years of pediatric clinical experience. She has been the owner and administrator of a…

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Chapters & learning objectives

Keeping Your Patient Mobile and Active

1. Keeping Your Patient Mobile and Active

Chapter One will identify and justify the benefits of stretching in this population. We will also discuss precautions of particular techniques of stretching that are considered contraindicated at this time in this population

Exercise Guidelines

2. Exercise Guidelines

Chapter Two will discuss exercise, the advantages, and contradictions. Learners will be able to discuss and describe the current recommendations for exercise in this population.

Equipment Changes and Challenges Across the Stages of DMD

3. Equipment Changes and Challenges Across the Stages of DMD

Chapter Three will discuss the important points to consider in selection of equipment for use at home and in the community and correlate the transitional stages of DMD with the need for particular pieces of durable medical equipment. Additionally, participants will be able to discuss and recommend equipment for safe transfers.

Case Examples

4. Case Examples

Presentation of a case examples highlighting differences in gait and functional skills. Demonstration of passive and active stretching and bracing to preserve ROM.

Participation and Quality of Life (QOL)

5. Participation and Quality of Life (QOL)

This chapter will explore aspects that are critical to consider in your overall plan of care. The inclusion of participation in community to enhance a young person's quality of life will be highlighted. Warning signs of depression for patient and caregiver will be explored as well as the role of the physical therapist when providing care to a patient with DMD and their family. Resources will be surveyed.

Panel Discussion

6. Panel Discussion

In this chapter, we will interview the mother of a young boy with DMD and a pediatric physical therapist. Questions will explore the challenges and difficulties surrounding the daily routine of having a child with DMD. The therapist will describe the role they play in the care of a child with DMD. Each participant will highlight pearls of wisdom for therapists treating the patient with DMD and their families.